Our Blog
From Uncertainty to Clarity: Using Real-World Evidence to Advance Patient Support
June 5, 2026
In our clinical roles at PANTHERx® Rare, we spend a lot of time thinking about two things: How do we help patients access therapy—and how do we better understand their experience once they do? Because too often, what happens between those two moments is where patients get stuck.
The Voice of the Patient: Lessons from a Wilson Disease Roundtable
May 27, 2026
By Robert Fetty, Account Manager, PANTHERx Rare Earlier this spring, I attended the Wilson Disease Association for its 2026 Spring Support Symposium in Ann Arbor, Michigan....
From Hope to Access: Three Lessons From the Front Lines of Rare Disease Launches
April 30, 2026
Every day, our work is guided by one question: how do we help people with rare diseases get the treatments they need so they can focus on living their lives, not navigating systems?
From Insight to Intention: What the Rare Disease Community Is Asking of Itself
March 24, 2026
I recently had the privilege to serve as a Co-Chair of this year’s Access USA Rare Disease Summit, which means I had the privilege of...
Specialty Pharmacy Continuum: As Rare Disease Drug Approvals Accelerate, Survey Highlights Gaps in Care Coordination
Specialty Pharmacy Continuum | March 2, 2026
As the pipeline for rare disease therapies continues to expand, new survey data suggest that the healthcare system is not keeping pace with the coordination...
Celebrating Rare Disease Day at PANTHERx: A Day of Purpose, Connection, and Community
March 2, 2026
https://vimeo.com/1168986887?share=copy&fl=sv&fe=ci Rare Disease Day is more than a date on the calendar at PANTHERx. It’s a moment to pause, reflect, and reconnect with the mission that drives our work every day. Although...
Patient-centric care needs to be at the epicenter of CGT expansion
February 18, 2026
Dr. Jastrab speaks on a panel at Advanced Therapies Week in February 2026. By Abigail Jastrab, PharmD, BCPS Director, Patient Engagement and Clinical Innovation As...