Our Blog
From Hope to Access: Three Lessons From the Front Lines of Rare Disease Launches
April 30, 2026
By Katie DiLorenzo, PharmD, SVP, Patient and Pharmacy Services and Austin Russian, PharmD, SVP, Program Excellence Every day, our work is guided by one question:...
From Insight to Intention: What the Rare Disease Community Is Asking of Itself
March 24, 2026
I recently had the privilege to serve as a Co-Chair of this year’s Access USA Rare Disease Summit, which means I had the privilege of...
Richard Faris, PharmD, Chief Commercial & Clinical Officer at PANTHERx Rare was a guest on the Pharmacy Podcast Network to new stakeholder feedback data revealing communication gaps in rare disease care.
Pharmacy Profit Summit 2026 + Rare Disease Day 2026 | TWIRx | Pharmacy Podcast Network | March 2, 2026
On this episode of This Week in Pharmacy, we spotlight two major conversations shaping the future of pharmacy practice in 2026. First, we welcome Dr....
Specialty Pharmacy Continuum: As Rare Disease Drug Approvals Accelerate, Survey Highlights Gaps in Care Coordination
Specialty Pharmacy Continuum | March 2, 2026
As the pipeline for rare disease therapies continues to expand, new survey data suggest that the healthcare system is not keeping pace with the coordination...
Celebrating Rare Disease Day at PANTHERx: A Day of Purpose, Connection, and Community
March 2, 2026
https://vimeo.com/1168986887?share=copy&fl=sv&fe=ci Rare Disease Day is more than a date on the calendar at PANTHERx. It’s a moment to pause, reflect, and reconnect with the mission that drives our work every day. Although...
Fierce Healthcare: Survey: Many rare disease patients struggle to navigate care
Fierce Healthcare | February 26, 2026
Communication gaps, preventable delays and limited support place significant responsibility on patients on the rare disease journey, a new survey finds. The survey (PDF) was...
Patient-centric care needs to be at the epicenter of CGT expansion
February 18, 2026
Dr. Jastrab speaks on a panel at Advanced Therapies Week in February 2026. By Abigail Jastrab, PharmD, BCPS Director, Patient Engagement and Clinical Innovation As...