February 14th, 2026
Rare Stories from
the Heart
At PANTHERx® Rare, we’ve always believed that healthcare is at its best when it is driven by heart. Not by systems or scorecards, but by people and their stories.
Nowhere is that truer than in rare and orphan diseases. Imagine struggling for years with symptoms that no one can name. You see specialist after specialist. Tests come back inconclusive. There is no clear path, no easy label, and certainly no roadmap. Even when a diagnosis finally arrives, you might face a long list of unknowns without a clear path to answers.
This is the common reality for many of the patients and families we serve, yet each has an individual journey. A young adult learning to manage a treatment that touches every part of their daily life. A parent counting doses and appointments while trying to protect their child’s sense of normalcy. A caregiver who has become an expert in a condition most people have never heard of.
Helping someone through that kind of journey takes intensive work. It means understanding how a therapy fits into the details of a person’s life, not just their chart. It means solving for access, affordability, timing, side effects, and emotional toll—often all at the same time. It’s a different ballgame than the rest of specialty pharmacy, and that’s exactly why PANTHERx exists.
I am proud to introduce Rare Stories from the Heart, a collection of stories from patients, caregivers, and our own RxARECARE® team members. In these stories, you’ll see what rare disease care looks like when it’s working at its best:
A patient whose therapy finally brings stability after a lifetime of uncertainty
A RxARECARE team that moves quickly and creatively, so a critical dose arrives safely on time
A colleague who writes a book to help ease a child’s fear of injections
These stories go beyond inspiration. They offer insights that help us design better care, ask better questions, and support each rare journey with empathy and intention.
As a dedicated rare pharmacy, we have the privilege of practicing the way every pharmacist wishes they could: with time to know each patient by name, with an expert team around them, and with the tenacity to do what is right, even when it is hard.
Healthcare needs heart. At PANTHERx Rare, we are proud to deliver it—one rare journey at a time.
Bansi Nagji
Chief Executive Officer
PANTHERx Rare
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