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	<title>2021 Archives - PANTHERx Rare</title>
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	<description>Reinventing Pharmacy, Revolutionizing Specialty, Redefining Care</description>
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	<title>2021 Archives - PANTHERx Rare</title>
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		<title>Q3 2021: PANTHERx Continues to Hold #1 Ranking in Quarterly MMIT Patient Satisfaction Survey</title>
		<link>https://pantherxrare.com/2021/12/10/q3-2021-pantherx-continues-to-hold-1-ranking-in-quarterly-mmit-patient-satisfaction-survey/</link>
		
		<dc:creator><![CDATA[PANTHERx Rare]]></dc:creator>
		<pubDate>Fri, 10 Dec 2021 13:30:07 +0000</pubDate>
				<category><![CDATA[2021]]></category>
		<category><![CDATA[Archive]]></category>
		<category><![CDATA[Industry News]]></category>
		<guid isPermaLink="false">https://pantherxrare.com/?p=17453</guid>

					<description><![CDATA[<p>This past year has proven to be one of record patient satisfaction scores for PANTHERx Rare. In the first half of 2021, PANTHERx led the...</p>
<p>The post <a href="https://pantherxrare.com/2021/12/10/q3-2021-pantherx-continues-to-hold-1-ranking-in-quarterly-mmit-patient-satisfaction-survey/">Q3 2021: PANTHERx Continues to Hold #1 Ranking in Quarterly MMIT Patient Satisfaction Survey</a> appeared first on <a href="https://pantherxrare.com">PANTHERx Rare</a>.</p>
]]></description>
										<content:encoded><![CDATA[<p><img fetchpriority="high" decoding="async" class="size-full wp-image-17192 alignright" src="https://pantherxrare.com/wp-content/uploads/2021/03/logo-mmit.png" alt="" width="256" height="256" />This past year has proven to be one of record patient satisfaction scores for PANTHERx Rare. In the first half of 2021, PANTHERx led the independent specialty pharmacy category of the MMIT Patient Satisfaction survey with quarterly Net Promoter Scores (NPS) of 96 and 97. Net Promoter Score (NPS) is compiled by asking patients, on a scale of 0 to 10, how likely they would be to recommend their specialty pharmacy to a friend or family member. For the third quarter of 2021, PANTHERx continued its upward trajectory, obtaining the highest NPS among all independent specialty pharmacies surveyed, <strong>98</strong> (out of 100).</p>
<p>“Every associate in our organization deserves a huge congratulations,” said Rob Snyder, President of PANTHERx. “Coming off the heels of our 4<sup>th</sup> Patient Choice Award, we could not be happier to see PANTHERx continue to aim high and achieve lofty goals. We push to improve quarter after quarter, and you can see that in our MMIT scores. The COVID-19 pandemic created obstacles for our organization to overcome, but you wouldn’t know that looking at our scores. Our associates come to work, putting aside the increased personal and professional challenges of COVID, to focus on our patients and the ways that we can help them adhere to therapy and achieve their individual health goals.”</p>
<p>The MMIT Patient Satisfaction Survey provides data that helps PANTHERx measure success and identify areas for improvement. This critical feedback allows PANTHERx to adjust our programs to the needs and desires of the patients we serve. Data from the recent survey illustrates:</p>
<ul>
<li>100% of patients surveyed indicated that they are satisfied with medication fill and refill times</li>
<li>100% of patients surveyed indicated that they are satisfied with the amount of time it takes to speak with a live person, putting PANTHERx in the lead in this category when compared to the other 10 participating independent specialty pharmacies</li>
<li>when patients were asked how they would feel if forced to change specialty pharmacies, 94% responded that they would be <em>very unhappy</em></li>
<li>among independent specialty pharmacies, PANTHERx had the highest rate of patients who find the specialty pharmacy’s additional services <em>very valuable</em></li>
</ul>
<p><strong>About PANTHERx Rare</strong></p>
<p>PANTHERx, part of Envolve Pharmacy Solutions, is one of the largest and fastest growing rare pharmacies in the United States. PANTHERx transforms lives by delivering medicine breakthroughs, clinical excellence, and access solutions to patients living with rare and devastating conditions. Although the overall incidence of rare diseases is as common as diabetes, less than 7% of the 7,000 known rare and devastating disorders have an approved therapy. Changes in federal policy and advances in science have led to a surge in FDA orphan drug approvals, providing tremendous hope to the rare disease community.</p>
<p>PANTHERx was recently awarded Specialty Pharmacy of the Year by the National Association of Specialty Pharmacy (NASP) and earned the inaugural Accredited Distinction in Rare Diseases and Orphan Drugs from the Accreditation Commission for Health Care (ACHC). PANTHERx is a four-time winner of the prestigious MMIT Patient Choice Award, including the 2021 honor. PANTHERx is headquartered in Pittsburgh, Pennsylvania, licensed in all 50 states, and holds accreditations from URAC, NABP, and ACHC.</p>
<p>&nbsp;</p>
<p>The post <a href="https://pantherxrare.com/2021/12/10/q3-2021-pantherx-continues-to-hold-1-ranking-in-quarterly-mmit-patient-satisfaction-survey/">Q3 2021: PANTHERx Continues to Hold #1 Ranking in Quarterly MMIT Patient Satisfaction Survey</a> appeared first on <a href="https://pantherxrare.com">PANTHERx Rare</a>.</p>
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		<title>Outstanding Patient Satisfaction Scores Merit PANTHERx #1 Rank for Q2 2021</title>
		<link>https://pantherxrare.com/2021/09/15/outstanding-patient-satisfaction-scores-merit-pantherx-1-rank-for-q2-2021/</link>
		
		<dc:creator><![CDATA[PANTHERx Rare]]></dc:creator>
		<pubDate>Wed, 15 Sep 2021 15:54:48 +0000</pubDate>
				<category><![CDATA[2021]]></category>
		<category><![CDATA[Archive]]></category>
		<category><![CDATA[Industry News]]></category>
		<guid isPermaLink="false">https://pantherxrare.com/?p=17381</guid>

					<description><![CDATA[<p>PANTHERx Rare Pharmacy is proud to have again earned the #1 ranking in the quarterly patient satisfaction survey conducted by MMIT, an independent national survey...</p>
<p>The post <a href="https://pantherxrare.com/2021/09/15/outstanding-patient-satisfaction-scores-merit-pantherx-1-rank-for-q2-2021/">Outstanding Patient Satisfaction Scores Merit PANTHERx #1 Rank for Q2 2021</a> appeared first on <a href="https://pantherxrare.com">PANTHERx Rare</a>.</p>
]]></description>
										<content:encoded><![CDATA[<p>PANTHERx Rare Pharmacy is proud to have again earned the #1 ranking in the quarterly patient satisfaction survey conducted by MMIT, an independent national survey entity. For the second quarter of 2021, PANTHERx obtained the highest Net Promoter Score (NPS) among all independent specialty pharmacies surveyed. Net Promoter Score (NPS) is compiled by asking patients, on a scale of 0 to 10, how likely they would be to recommend their specialty pharmacy to a friend or family member. With an NPS of <strong>97</strong> (out of 100), PANTHERx scored nearly 50% higher than the industry average.</p>
<p>“Our focus on rare and orphan diseases and our dedication to the people we serve has always driven PANTHERx, propelling us forward and motivating our success. Feedback is critical to our operations and receiving it straight from our patients, as provided by the MMIT Specialty Pharmacy Patient Satisfaction surveys, is invaluable. We strive to create the best possible experience for every person that PANTHERx serves. To know where we are excelling, or where improvements may be needed allows us to quantitatively assess our performance and progress quarter over quarter and year over year. We are proud to have earned such high marks from our patients and embrace the challenge of maintaining, even exceeding, our rank,” said Rob Snyder, President of PANTHERx Rare.</p>
<p>The PANTHERx team is honored to be held in such high regard by our patients. To know we are making a positive impact in the lives of so many is rewarding. Highlights from the recent survey include:</p>
<ul>
<li>100% of patients surveyed indicated that they are satisfied with the amount of time it takes to speak with a live person, putting PANTHERx in the lead in this category when compared to the other 11 participating independent specialty pharmacies</li>
<li>when patients were asked if they would be unhappy if they were forced to switch to a different specialty pharmacy, 88% responded they would be <em>very unhappy</em></li>
<li>88% of patients reported monthly treatment outreach from PANTHERx, more than double the industry average</li>
<li>among independent specialty pharmacies, PANTHERx had the highest rate of patients who find the specialty pharmacy’s additional services <em>very valuable</em></li>
</ul>
<p><strong>About PANTHERx Rare Pharmacy</strong></p>
<p>PANTHERx, part of Envolve Pharmacy Solutions, is one of the largest and fastest growing rare pharmacies in the United States. PANTHERx transforms lives by delivering medicine breakthroughs, clinical excellence, and access solutions to patients living with rare and devastating conditions. Although the overall incidence of rare diseases is as common as diabetes, less than 7% of the 7,000 known rare and devastating disorders have an approved therapy. Changes in federal policy and advances in science have led to a surge in FDA orphan drug approvals, providing tremendous hope to the rare disease community.</p>
<p>PANTHERx was recently awarded Specialty Pharmacy of the Year by the National Association of Specialty Pharmacy (NASP) and earned the inaugural Accredited Distinction in Rare Diseases and Orphan Drugs from the Accreditation Commission for Health Care (ACHC). PANTHERx is a three-time winner of the prestigious MMIT Patient Choice Award, including the 2020 honor. PANTHERx is headquartered in Pittsburgh, Pennsylvania, licensed in all 50 states, and holds accreditations from URAC, NABP, and ACHC.</p>
<p>&nbsp;</p>
<p>The post <a href="https://pantherxrare.com/2021/09/15/outstanding-patient-satisfaction-scores-merit-pantherx-1-rank-for-q2-2021/">Outstanding Patient Satisfaction Scores Merit PANTHERx #1 Rank for Q2 2021</a> appeared first on <a href="https://pantherxrare.com">PANTHERx Rare</a>.</p>
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		<title>PANTHERx Rare Earns Rare Disease Pharmacy Designation from URAC</title>
		<link>https://pantherxrare.com/2021/08/13/pantherx-rare-earns-rare-disease-pharmacy-designation-from-urac/</link>
		
		<dc:creator><![CDATA[PANTHERx Rare]]></dc:creator>
		<pubDate>Fri, 13 Aug 2021 15:42:23 +0000</pubDate>
				<category><![CDATA[2021]]></category>
		<category><![CDATA[Archive]]></category>
		<category><![CDATA[Industry News]]></category>
		<guid isPermaLink="false">https://pantherxrare.com/?p=17359</guid>

					<description><![CDATA[<p>PANTHERx Rare is excited to announce that it has earned URAC’s Rare Disease Center of Excellence Designation. This distinction, given only to pharmacies that establish...</p>
<p>The post <a href="https://pantherxrare.com/2021/08/13/pantherx-rare-earns-rare-disease-pharmacy-designation-from-urac/">PANTHERx Rare Earns Rare Disease Pharmacy Designation from URAC</a> appeared first on <a href="https://pantherxrare.com">PANTHERx Rare</a>.</p>
]]></description>
										<content:encoded><![CDATA[<p><img decoding="async" class="size-full wp-image-17360 alignright" src="https://pantherxrare.com/wp-content/uploads/2021/08/AccreditationSeal-Rare-website-use.jpg" alt="" width="144" height="278" />PANTHERx Rare is excited to announce that it has earned URAC’s Rare Disease Center of Excellence Designation. This distinction, given only to pharmacies that establish the high level of skill required to serve patients with rare diseases, demonstrates the continued commitment from PANTHERx to serve people living with rare and devastating conditions.</p>
<p>PANTHERx maintains high program standards that address patient management, staff education, coordinated patient care, and comprehensive data reporting. This creates numerous benefits for people who receive their medications from PANTHERx, as the company can provide a more customized and high touch approach to care. Instead of the one-size fits all approach, the tailored, individualized programs created by PANTHERx become the standard of care for patients with rare diseases. PANTHERx has distinguished itself in the market as a rare disease pharmacy and provides a high level of care that patients have come to expect.</p>
<p>“PANTHERx is proud to be recognized by URAC for the efforts we have made on behalf of our patients and for the betterment of the rare disease community. As the rare pharmacy industry gains increased recognition, PANTHERx is honored to be at the forefront, pioneering enhanced patient services, refined data collection and reporting, and compassionate patient care,” said Rob Snyder, President of PANTHERx. “This URAC distinction is a public acknowledgement of pharmacy quality to help ensure people living with rare disorders receive the highest quality of care that the industry has to offer.”</p>
<p><strong>About PANTHERx Rare</strong></p>
<p>PANTHERx, part of Envolve Pharmacy Solutions, is one of the largest and fastest growing rare pharmacies in the United States. PANTHERx transforms lives by delivering medicine breakthroughs, clinical excellence, and access solutions to patients living with rare and devastating conditions. Although the overall incidence of rare diseases is as common as diabetes, less than 7% of the 7,000 known rare and devastating disorders have an approved therapy. Changes in federal policy and advances in science have led to a surge in FDA orphan drug approvals, providing tremendous hope to the rare disease community.</p>
<p>PANTHERx was recently awarded Specialty Pharmacy of the Year by the National Association of Specialty Pharmacy (NASP) and earned the inaugural Accredited Distinction in Rare Diseases and Orphan Drugs from the Accreditation Commission for Health Care (ACHC). PANTHERx is a three-time winner of the prestigious MMIT Patient Choice Award, including the 2020 honor. PANTHERx is headquartered in Pittsburgh, Pennsylvania, licensed in all 50 states, and holds accreditations from URAC, NABP, and ACHC.</p>
<p><strong>About URAC</strong></p>
<p>Founded in 1990 as a non-profit organization, URAC is the independent leader in promoting health care quality and patient safety through renowned accreditation programs. URAC develops its evidence-based standards in collaboration with a wide array of stakeholders and industry experts. URAC’s portfolio of accreditation and certification programs span the health care industry, addressing pharmacies, health care management and operations, telehealth, health plans, medical practices and more. URAC accreditation is a symbol of excellence for organizations to showcase their validated commitment to quality and accountability. Learn more at <a href="https://www.urac.org/">https://www.urac.org/</a></p>
<p>The post <a href="https://pantherxrare.com/2021/08/13/pantherx-rare-earns-rare-disease-pharmacy-designation-from-urac/">PANTHERx Rare Earns Rare Disease Pharmacy Designation from URAC</a> appeared first on <a href="https://pantherxrare.com">PANTHERx Rare</a>.</p>
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		<title>PANTHERx Earns #1 Patient Satisfaction for Exemplary Performance in Q1 2021</title>
		<link>https://pantherxrare.com/2021/06/03/pantherx-earns-1-patient-satisfaction-for-exemplary-performance-in-q1-2021/</link>
		
		<dc:creator><![CDATA[PANTHERx Rare]]></dc:creator>
		<pubDate>Thu, 03 Jun 2021 12:34:05 +0000</pubDate>
				<category><![CDATA[2021]]></category>
		<category><![CDATA[Archive]]></category>
		<category><![CDATA[Industry News]]></category>
		<guid isPermaLink="false">https://pantherxrare.com/?p=17266</guid>

					<description><![CDATA[<p>PANTHERx Rare Pharmacy is proud to have again earned the #1 ranking in the quarterly patient satisfaction survey conducted by MMIT, an independent national survey...</p>
<p>The post <a href="https://pantherxrare.com/2021/06/03/pantherx-earns-1-patient-satisfaction-for-exemplary-performance-in-q1-2021/">PANTHERx Earns #1 Patient Satisfaction for Exemplary Performance in Q1 2021</a> appeared first on <a href="https://pantherxrare.com">PANTHERx Rare</a>.</p>
]]></description>
										<content:encoded><![CDATA[<p>PANTHERx Rare Pharmacy is proud to have again earned the #1 ranking in the quarterly patient satisfaction survey conducted by MMIT, an independent national survey entity. For the first quarter of 2021, PANTHERx obtained the highest Net Promoter Score (NPS) among all independent specialty pharmacies surveyed. Net Promoter Score (NPS) is compiled by asking patients, on a scale of 0 to 10, how likely they would be to recommend their specialty pharmacy to a friend or family member. With an NPS of 96 (out of 100), <img decoding="async" class="size-full wp-image-17192 alignright" src="https://pantherxrare.com/wp-content/uploads/2021/03/logo-mmit.png" alt="" width="256" height="256" />PANTHERx scored 37 points higher than the industry average.</p>
<p>“The opinions of our patients are of the utmost importance to PANTHERx, as we pride ourselves on providing superior services and white-glove care to our patients. The MMIT Specialty Pharmacy Patient Satisfaction surveys are a means by which we can quantitatively assess our performance and how we are perceived by the people we serve. Our consistently high rankings in this anonymous survey are an immense source of gratification for our company. To know that our patients are satisfied with our efforts brings greater meaning to the everyday job functions of our associates because we know that all of our actions, however small they may seem, are done in service of people living with rare diseases,” said Rob Snyder, President of PANTHERx Rare.</p>
<p>PANTHERx received perfect NPS scores from people living with Lambert-Eaton Myasthenic Syndrome, Hypophosphatasia, and Infantile Spasms amongst others.</p>
<p>The PANTHERx team is immeasurably honored to have earned such high marks from its patients, validating the company’s laser focus on rare disease and its dedication to providing white-glove patient care:</p>
<ul>
<li>PANTHERx ranked best when patients were asked if they would be unhappy if they were forced to switch to a different specialty pharmacy, with 96% saying they would be VERY Unhappy.</li>
<li>72% of patients reported monthly treatment outreach from PANTHERx, more than double the industry average.</li>
<li>100% of patients surveyed indicated that they are satisfied with the time it takes for PANTHERx to fill and refill their prescriptions.</li>
<li>98% of patients surveyed indicated that they are satisfied with the amount of time it takes to speak with a live person when they call PANTHERx with a question.</li>
</ul>
<p><strong>About PANTHERx Rare Pharmacy</strong></p>
<p>PANTHERx Rare Pharmacy, now part of Centene’s Envolve Pharmacy Solutions, is one of the largest and fastest growing rare pharmacies in the United States. PANTHERx Rare transforms lives by delivering medicine breakthroughs, clinical excellence, and access solutions to patients afflicted with rare and devastating conditions. Although the incidence of rare disease is as common as diabetes, less than 7% of the 7,000 known rare and devastating disorders have an approved therapy. Changes in federal policy and advances in science have led to a surge in FDA orphan drug approvals, providing tremendous hope to the rare disease community.</p>
<p>PANTHERx was recently recognized as a Rare Disease Center of Excellence by URAC. PANTHERx was previously awarded Specialty Pharmacy of the Year by the National Association of Specialty Pharmacy (NASP) and earned the inaugural Accredited Distinction in Rare Diseases and Orphan Drugs from the Accreditation Commission for Health Care (ACHC). PANTHERx is a three-time winner of the prestigious MMIT Patient Choice Award, including the 2020 honor. PANTHERx is headquartered in Pittsburgh, Pennsylvania, licensed in all 50 states, and holds accreditations from URAC, NABP, and ACHC.</p>
<p>&nbsp;</p>
<p>The post <a href="https://pantherxrare.com/2021/06/03/pantherx-earns-1-patient-satisfaction-for-exemplary-performance-in-q1-2021/">PANTHERx Earns #1 Patient Satisfaction for Exemplary Performance in Q1 2021</a> appeared first on <a href="https://pantherxrare.com">PANTHERx Rare</a>.</p>
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		<title>PANTHERx Closes 2020 with Another #1 Patient Satisfaction Victory</title>
		<link>https://pantherxrare.com/2021/03/10/prx-q4-2020-patient-satisfaction-victory/</link>
		
		<dc:creator><![CDATA[PANTHERx Rare]]></dc:creator>
		<pubDate>Wed, 10 Mar 2021 19:08:56 +0000</pubDate>
				<category><![CDATA[2021]]></category>
		<category><![CDATA[Archive]]></category>
		<category><![CDATA[Industry News]]></category>
		<guid isPermaLink="false">https://pantherxrare.com/?p=17191</guid>

					<description><![CDATA[<p>PANTHERx Rare Pharmacy is proud to have again earned the #1 ranking in the quarterly patient satisfaction survey conducted by MMIT, an independent national survey...</p>
<p>The post <a href="https://pantherxrare.com/2021/03/10/prx-q4-2020-patient-satisfaction-victory/">PANTHERx Closes 2020 with Another #1 Patient Satisfaction Victory</a> appeared first on <a href="https://pantherxrare.com">PANTHERx Rare</a>.</p>
]]></description>
										<content:encoded><![CDATA[<p><img loading="lazy" decoding="async" class="size-full wp-image-17192 alignright" src="https://pantherxrare.com/wp-content/uploads/2021/03/logo-mmit.png" alt="" width="256" height="256" />PANTHERx Rare Pharmacy is proud to have again earned the #1 ranking in the quarterly patient satisfaction survey conducted by MMIT, an independent national survey entity. For the fourth quarter of 2020, PANTHERx obtained the highest Net Promoter Score (NPS) among all pharmacies surveyed. Net Promoter Score (NPS) is compiled by asking patients, on a scale of 0 to 10, how likely they would be to recommend their specialty pharmacy to a friend or family member. With an NPS of 98 (out of 100), PANTHERx scored 42 points higher than the industry average.</p>
<p>“The MMIT Specialty Pharmacy Patient Satisfaction surveys are a way for our patients to actively and anonymously rate PANTHERx’s services and the level of care we provide. Our consistently high rankings are an immense source of pride for our company and an accomplishment celebrated by our associates. To have scored so excellently during 2020, a year fraught with challenges, shows the solid foundation of our company, our processes, our programs, and our people,” said Rob Snyder, President of PANTHERx Rare.</p>
<p>PANTHERx received perfect NPS scores from people living with Lambert-Eaton Myasthenic Syndrome, Hypophosphatasia, and Infantile Spasms amongst others.</p>
<p>The PANTHERx team is proud to have earned such high marks from its patients, validating the team’s authentic dedication to white-glove rare patient care:</p>
<ul>
<li>PANTHERx ranked best when patients were asked if they would be unhappy if they were forced to switch to a different specialty pharmacy, with 96% saying they would be VERY Unhappy.</li>
<li>73% of patients reported monthly treatment outreach from PANTHERx, more than double the industry average.</li>
<li>100% of patients surveyed indicated that they are satisfied with the time it takes for PANTHERx to fill their prescription.</li>
<li>100% of patients surveyed indicated that they are satisfied with the amount of time it takes to speak with a live person when they call PANTHERx with a question.</li>
</ul>
<p><strong>About PANTHERx Rare Pharmacy</strong><br />
PANTHERx Rare Pharmacy, now part of Centene’s Envolve Pharmacy Solutions, is one of the largest and fastest growing rare pharmacies in the United States. PANTHERx Rare transforms lives by delivering medicine breakthroughs, clinical excellence, and access solutions to patients afflicted with rare and devastating conditions. Although the incidence of rare disease is as common as diabetes, less than 7% of the 7,000 known rare and devastating disorders have an approved therapy. Changes in federal policy and advances in science have led to a surge in FDA orphan drug approvals, providing tremendous hope to the rare disease community.</p>
<p>PANTHERx was recently awarded Specialty Pharmacy of the Year by the National Association of Specialty Pharmacy (NASP) and earned the inaugural Accredited Distinction in Rare Diseases and Orphan Drugs from the Accreditation Commission for Health Care (ACHC). PANTHERx is a three-time winner of the prestigious MMIT Patient Choice Award, including the 2020 honor. PANTHERx is headquartered in Pittsburgh, Pennsylvania, licensed in all 50 states, and holds accreditations from URAC, NABP, and ACHC.</p>
<p>&nbsp;</p>
<p>The post <a href="https://pantherxrare.com/2021/03/10/prx-q4-2020-patient-satisfaction-victory/">PANTHERx Closes 2020 with Another #1 Patient Satisfaction Victory</a> appeared first on <a href="https://pantherxrare.com">PANTHERx Rare</a>.</p>
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		<title>Celebrating Rare Disease Day</title>
		<link>https://pantherxrare.com/2021/02/25/celebrating-rare-disease-day/</link>
		
		<dc:creator><![CDATA[PANTHERx Rare]]></dc:creator>
		<pubDate>Thu, 25 Feb 2021 16:07:00 +0000</pubDate>
				<category><![CDATA[2021]]></category>
		<category><![CDATA[Archive]]></category>
		<category><![CDATA[Blog]]></category>
		<guid isPermaLink="false">https://pantherxrare.com/?p=17181</guid>

					<description><![CDATA[<p>What is Rare Disease Day? As scientific breakthroughs have emerged and modern forms of communication have connected patients, specialists, policy makers, activists, and support organizations...</p>
<p>The post <a href="https://pantherxrare.com/2021/02/25/celebrating-rare-disease-day/">Celebrating Rare Disease Day</a> appeared first on <a href="https://pantherxrare.com">PANTHERx Rare</a>.</p>
]]></description>
										<content:encoded><![CDATA[<p><strong><img loading="lazy" decoding="async" class="wp-image-17182 alignright" src="https://pantherxrare.com/wp-content/uploads/2021/02/rdd-logo-transparent.png" alt="" width="396" height="380" />What is Rare Disease Day?</strong><br />
As scientific breakthroughs have emerged and modern forms of communication have connected patients, specialists, policy makers, activists, and support organizations across the word, the Rare Disease Community has grown and so has its passion to raise awareness in support of rare disease research and patient advocacy. In 2008, <a href="https://www.eurordis.org/about-eurordis">EURORDIS</a>, a non-profit patient alliance of now nearly one thousand organizations from 73 countries, wanted to set aside a special day for combined efforts to raise awareness about the prevalence of rare diseases. Leap Day was specifically chosen for this special designation as it is a “rare” day that occurs only once every four years.</p>
<p>The first Rare Disease Day was celebrated on February 29th, 2008 by EURORDIS and its Council of National Alliances across Europe. The tradition quickly spread around the world, amplifying the voice of the rare disease community. Over the last thirteen years, the final day of February has been a day of hope, celebration, and awareness for people and families living with the daily repercussions of rare diseases. It is a chance for advocates, policy makers, and healthcare organizations to celebrate the wins; the research performed, the medications launched, and the patients who have received hope and the chance to live a more healthy life; while recognizing that there is much more research to perform, many more medications to launch, and still many more patients who are living with rare diseases desperate for answers.</p>
<p><strong>PANTHERx Rare: Where Every Day is Rare Disease Day</strong><br />
PANTHERx Rare, now a part of Centene’s Envolve Pharmacy Solutions, is the one of the largest and fastest growing rare pharmacies in the United States. We dispense nearly two dozen rare and orphan medications while supporting tens of thousands of patients across the country through our proprietary RxARECARE® programs and SWFT® technology systems.</p>
<p>“We are constantly evolving, reimagining old programs and creating new ones for the benefit of our patients and their families,” said Rob Snyder, President of PANTHERx Rare. “We have cultivated teams of people who understand operations, business, leadership, and most importantly, rare diseases. Our associates provide every PANTHERx patient with a unique combination of clinical knowledge and personal empathy. We are so invested in the lives of our patients that their wins are our wins—at PANTHERx, every day is Rare Disease Day and we celebrate it.”</p>
<p>PANTHERx offers dozens of enhanced fully customizable services to our patients and partners ranging from rapid refill capabilities and patient text notifications to custom fulfillment and shipping solutions and tailored data analytics suites. Our technical and clinical capabilities shine in each of our programs, but it is our personal touch, our ethos of sincere care, that sets PANTHERx apart.</p>
<p><strong>Rare Disease Day: Participate with PANTHERx</strong><br />
Visit <a href="https://www.rarediseaseday.org/">rarediseaseday.org</a> to find information about the thousands of events happening around the world on the last day of February. Follow PANTHERx on social media and like, comment on, and repost our Rare Disease Day posts to spread the word about this important day with your family, friends, and connections.</p>
<p>To download your own digital and printable media, please visit <a href="https://www.rarediseaseday.org/downloads/">https://www.rarediseaseday.org/downloads/</a></p>
<p>We always love to hear from you &#8211; tag us in your posts!</p>
<p><strong>About PANTHERx Rare</strong><br />
PANTHERx Rare, a Centene Envolve Pharmacy Solutions company, transforms lives by delivering medicine breakthroughs, clinical excellence, and access solutions to patients afflicted with rare and devastating conditions. Although the incidence is as common as diabetes, less than 7% of the 7,000 known rare and devastating disorders have an approved therapy. Changes in federal policy and advances in science have led to a surge in FDA orphan drug approvals, providing tremendous hope to the rare disease community.</p>
<p>PANTHERx was recently awarded Specialty Pharmacy of the Year by the National Association of Specialty Pharmacy (NASP) and earned the inaugural Accredited Distinction in Rare Diseases and Orphan Drugs from the Accreditation Commission for Health Care (ACHC). PANTHERx is a three-time winner of the prestigious MMIT Patient Choice Award, including the 2020 honor. PANTHERx is headquartered in Pittsburgh, Pennsylvania, licensed in all 50 states, and holds accreditations from URAC, NABP, and ACHC.</p>
<p>The post <a href="https://pantherxrare.com/2021/02/25/celebrating-rare-disease-day/">Celebrating Rare Disease Day</a> appeared first on <a href="https://pantherxrare.com">PANTHERx Rare</a>.</p>
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