PANTHERx is pleased to share the first video in our Patient Profile Series, featuring Caitlyn, a young woman living with Hypophosphatasia (HPP). Caitlyn shares what it is like to grow up, navigate college, and plan her future while considering the implications of her diagnosis. Debbie, Caitlyn’s mother, offers a unique perspective on her experiences caring for a child with a rare disease. PANTHERx has been providing care and facilitating medication coordination for Caitlyn since she began taking medication for HPP. Our associates, particularly those in Caitlyn’s RxARECARE® Team, were delighted to meet her, ask questions about her experiences with HPP, and put a face to the name and the family that they have been supporting for many years.

As PANTHERx expands this series, it is our hope that the profile patients find empowerment in sharing their stories. We hope viewers feel inspired and that they are made more knowledgeable about every disease state that PANTHERx supports. For people who are diagnosed with these diseases or who care for someone with a rare disease, we encourage them to find hope in these stories and a connection with the people profiled who, like them, live with a rare disease every day.

PANTHERx looks forward to introducing our community to many more of our extraordinary patients as this series progresses.

Caitlyn’s full video and profile can be found at on our Hypophosphatasia (HPP) Rare Disorders page.

If you would like to be considered for a PANTHERx Patient Profile please contact Ally Ayoob, Marketing Specialist, at aayoob@pantherxrare.com.

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The 2019 CFO of the Year award program will be held at a celebratory reception on November 6th at the Omni William Penn.

Click here to read more about Tim Kelly and his role at PANTHERx.

About PANTHERx Rare
PANTHERx Rare Pharmacy, The Rare Disease Specialty Pharmacy®, is headquartered in Pittsburgh, Pennsylvania. PANTHERx Rare’s mission is to transform lives by delivering medical breakthroughs, clinical excellence, and access solutions to patients afflicted with rare and devastating conditions. Every day we Define RxARE®, by developing focused solutions, bold innovations, and novel clinical services associated with the life-transforming therapies that we deliver.
PANTHERx was awarded 2018 Specialty Pharmacy of the Year by the National Association of Specialty Pharmacy as well as the American Pharmacy Purchasing Alliance. Zitter Health Insights awarded PANTHERx the Specialty Pharmacy Patient Choice Award winner for both 2017 and 2018. As a quad-accredited pharmacy, PANTHERx holds accreditations from URAC, VIPPS, ACHC, and CPPA.

The post PANTHERx Congratulates Controller Tim Kelly on 2019 CFO of the Year Award appeared first on PANTHERx Rare.

September 6, 2019 – Pittsburgh, PA

PANTHERx Rare Pharmacy has issued a Request for Information (RFI) for a Pharmacy Management System (PMS) that would replace the current digital operational environment and database structure. The RFI specifically seeks to provide PANTHERx Rare with the understanding of available marketplace solutions to enable pharmaceutical services in rare and orphan populations. The breadth of these interests and needs include operational workflow, revenue cycle management, patient record management, inventory control, shipping interfaces, prescription processing, communication capabilities, and custom data reporting. October 31st, 2019, is the current posted due date.

The post PANTHERx Rare Pharmacy Issues RFI for a State-of-the-Art Pharmacy Management System appeared first on PANTHERx Rare.

About the Research Projects
Dr. Goss centered her research around analysis of demographic and clinical differences between patients taking valbenazine 40 mg once daily and patients taking valbenazine 80 mg once daily. Valbenazine is a vesicular monoamine transporter 2 inhibitor indicated for the treatment of tardive dyskinesia (TD) in adult patients. Valbenazine is available in 40 mg and 80 mg capsules, with FDA-labeling recommending patients begin therapy with one 40 mg capsule by mouth daily for one week, then titrate to one 80 mg capsule daily thereafter. However, the labeling also states, “continuation of the 40 mg capsule may be appropriate for some patients.” The definition of that patient population is not provided in the labeling.

A retrospective database analysis was completed on all patients receiving valbenazine between January 1, 2018 and December 31, 2018. Data was collected from a single specialty pharmacy and variables of interest included patient demographics, medication profile, prescriber base (specialist vs. generalist), and adherence rates.

Based on this study, it was concluded that the 40 mg daily dose of valbenazine was more commonly utilized in females and patients aged 65 and older. Further research into the differences in each of these cohorts could provide key insights and optimize outcomes for patients living with tardive dyskinesia.
Click here to review Dr. Goss’s research poster:PANTHERx Valbenzine Research Poster

Dr. Barry’s research explored the value of medication specific referral forms and aimed to determine if targeted changes to manufacturer-developed referral forms resulted in fewer discrepancies, prescriber clarifications, and impacted initial turnaround time for specialty medications. The study examined 3 different therapies and utilized 200 randomly selected enrollment forms from each.

It was concluded that there is measurable value in medication specific enrollment forms. Targeted referral form changes can lead to a reduction in the need for clarifications between the specialty pharmacy and the prescriber. The study did not find any meaningful change in the rate of patient consent between manufacturer-developed and drug-specific enrollment forms. Notably, it was discovered that referral form discrepancies had minimal impact on initial medication turnaround times for patients.
Click here to review Dr. Barry’s research poster:PANTHERx Referral Form Research Poster

The post PANTHERx 2018-2019 Specialty Pharmacy Fellowship: Research Analysis & Presentations appeared first on PANTHERx Rare.

During the onsite visit, PANTHERx leadership and employees provided students with an overview of the specialty pharmacy industry and gave them an inside look at PANTHERx operations from care coordination to fulfillment. Students learned about PANTHERx’s dedication to our patients and the important role that we play in serving a diverse group of stakeholders. Students also experience a tour of the PANTHERx headquarter facility and were able to ask questions of our knowledgeable leadership and staff.

PANTHERx supports an educational corporate environment and is proud to encourage awareness in the student community about specialty pharmacy.

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